THe Air I Breathe
Dear Pastor Scott
Just wanted to thank you for covering us in prayer today, and always.
Kai has had a few nights of more rest and we are thankful for that. The drugs are in his system and they are helping his lungs to do what they can't on their own right now. We tried to cut his dose back by 25% because of the side effects (stunts growth, cognitive ability, his blood pressure, his blood sugar, his mood,severe fatigue,nausea,and he will have to be followed by an asthma specialist and have his morning cortisol levels checked among other treatments.)
We quickly saw that right now, he is relying on every bit of the medication to function.
So our prayer is that he will be able to do all a little guy wants to do without the need of such severe intervention.
Before Jay got paged into work this afternoon (thanks for the snacks that was all the lunch he had time for) we got to have a short conversation agreeing that we have never felt such love in a church setting as we did today. And I, as a mother who has just needed to keep going haven't really allowed myself to stop and feel, be broken for Kai, and let the sadness I know is there surface. So far, I just have needed to hold us all together. So thank you for doing those things for me today.Thank you for cracking a little, for shedding a tear, for feeling my heart.
How fitting that as we have been going through this the song that keeps whispering in my ear is
This is the air I breathe
This is the air I breathe
Your holy presence living in me
This is my daily bread
This is my daily bread
Your very word spoken to me
And I I'm desperate for you
And I I'm I'm lost without you
This is the air I breathe
This is the air I breathe
Your holy presence living in me
This is my daily bread
this is my daily bread
your very word spoken to me
And I'm, I'm desperate for you
And I'm, I'm lost without you
And I'm desperate for you
And I'm, I'm lost without you.
I'm lost without you.
I'm lost without you.
I'm desperate for you
I was singing this as I cleaned up after lunch today and then I heard a distant echo down the hall- It was Kai singing with a slight laboured breath " This is the air I breathe"
And I stopped to FEEL that moment.
Karen
Just wanted to thank you for covering us in prayer today, and always.
Kai has had a few nights of more rest and we are thankful for that. The drugs are in his system and they are helping his lungs to do what they can't on their own right now. We tried to cut his dose back by 25% because of the side effects (stunts growth, cognitive ability, his blood pressure, his blood sugar, his mood,severe fatigue,nausea,and he will have to be followed by an asthma specialist and have his morning cortisol levels checked among other treatments.)
We quickly saw that right now, he is relying on every bit of the medication to function.
So our prayer is that he will be able to do all a little guy wants to do without the need of such severe intervention.
Before Jay got paged into work this afternoon (thanks for the snacks that was all the lunch he had time for) we got to have a short conversation agreeing that we have never felt such love in a church setting as we did today. And I, as a mother who has just needed to keep going haven't really allowed myself to stop and feel, be broken for Kai, and let the sadness I know is there surface. So far, I just have needed to hold us all together. So thank you for doing those things for me today.Thank you for cracking a little, for shedding a tear, for feeling my heart.
How fitting that as we have been going through this the song that keeps whispering in my ear is
This is the air I breathe
This is the air I breathe
Your holy presence living in me
This is my daily bread
This is my daily bread
Your very word spoken to me
And I I'm desperate for you
And I I'm I'm lost without you
This is the air I breathe
This is the air I breathe
Your holy presence living in me
This is my daily bread
this is my daily bread
your very word spoken to me
And I'm, I'm desperate for you
And I'm, I'm lost without you
And I'm desperate for you
And I'm, I'm lost without you.
I'm lost without you.
I'm lost without you.
I'm desperate for you
I was singing this as I cleaned up after lunch today and then I heard a distant echo down the hall- It was Kai singing with a slight laboured breath " This is the air I breathe"
And I stopped to FEEL that moment.
Karen
posted by Karen | 12:43 PM
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